L I N K S 

Organic Acidemia Association

Information on organic acidemia's (metabolic errors)

NORD

GA1 Specific- Information on GA1 and support groups

NORD

National Organization for Rare Disorders, Inc. -general-

Resource Directory

Resource for children with special needs, medical assistance and support groups

MUMS

A unique support group which teams you up with a child with a similiar "need"

Dietary Specialties, Inc

Low Protein foods resource

Mayer Johnson Inc

Products for special needs and education

Rifton

Solid maple furniture, toys and equipment for children with disabilities

Snug Seat

Good site for walkers, wheel chairs and adaptive equipment

PKUMAC

The Mid-Atlantic Connection for PKU and Allied Disorders, Inc

RTDMC

Research Trust Metabolic Disorder Center. Based in England. This is a good site to use as a resource guide, they link families, sponser medical conferences, etc.

Meditronics

Drug Company that makes Baclofen and Inrathecal Baclofen pumps for spasticity

ISAAC-

International Society for Augmentative and Alternative Communication

Genetic Alliance

Advocacy Organization for Genetic groups. They sponsor annual workshops and conferences and put out numerous newletters.

Save Babies Through Screening

Formerly the Tyler for Life Foundation, Inc. This is a non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening.

ABLENET

Poineers of low to high tech communication devices.

Sigma-Tau

Pharmaceutical Company and makers of Carnitor

Pediatrix Screening

Information supplemental newborn screening

Carnitor

Sigma-Tau's website on Carnitor (carnitine)

Rare- Diseases

Office of Rare Diseases

Clinical Trials

Clinical trials for serious or life threatening diseases

NUCDF

National Urea Cycles Disorder Foundation

Cambrooke Foods

Supplier of low protein foods. Products include: bagels, breads, pastas, cheeses, baking products, snack foods and chocolates

Clinic for Special Children

Homepage

Altimate Medical

Standing frames and mobility aids for people with disabilities

© 2008 IOGA
FAQ