Organic Acidemia Association
Information on organic acidemia's (metabolic errors)
GA1 Specific- Information on GA1 and support groups
National Organization for Rare Disorders, Inc. -general-
Resource for children with special needs, medical assistance and support groups
A unique support group which teams you up with a child with a similiar "need"
Dietary Specialties, Inc
Low Protein foods resource
Mayer Johnson Inc
Products for special needs and education
Solid maple furniture, toys and equipment for children with disabilities
Good site for walkers, wheel chairs and adaptive equipment
The Mid-Atlantic Connection for PKU and Allied Disorders, Inc
Research Trust Metabolic Disorder Center. Based in England. This is a good site to use as a resource guide, they link families, sponser medical conferences, etc.
Drug Company that makes Baclofen and Inrathecal Baclofen pumps for spasticity
International Society for Augmentative and Alternative Communication
Advocacy Organization for Genetic groups. They sponsor annual workshops and conferences and put out numerous newletters.
Save Babies Through Screening
Formerly the Tyler for Life Foundation, Inc. This is a non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening.
Poineers of low to high tech communication devices.
Pharmaceutical Company and makers of Carnitor
Information supplemental newborn screening
Sigma-Tau's website on Carnitor (carnitine)
Office of Rare Diseases
Clinical trials for serious or life threatening diseases
National Urea Cycles Disorder Foundation
Supplier of low protein foods. Products include: bagels, breads, pastas, cheeses, baking products, snack foods and chocolates
Clinic for Special Children
Standing frames and mobility aids for people with disabilities